tag:blogger.com,1999:blog-10000891.post4677754393323178219..comments2024-02-21T19:56:57.057-08:00Comments on California Stem Cell Report: Parkinson's and the California Stem Cell Agency: Advocates Cite 'Overwhelming' Need to Air Unhappiness David Jensenhttp://www.blogger.com/profile/00077329461962729362noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-10000891.post-20694438416104636812015-09-21T12:57:10.801-07:002015-09-21T12:57:10.801-07:00 Just get into a clinical trial we are told. NEVER... Just get into a clinical trial we are told. NEVER go offshore. All clinics should be shut down. These poor patients are finding out that there is no such thing as expediency at CIRM. How many years now have they been telling patients that there will be lots of clinical trials and cures are just around the corner? Barbara/Stem Cell Pioneersnoreply@blogger.comtag:blogger.com,1999:blog-10000891.post-72276969897922641592015-09-21T11:43:37.083-07:002015-09-21T11:43:37.083-07:00Just get into a clinical trial we are told. NEVER ...Just get into a clinical trial we are told. NEVER go offshore. All stem cell clinics should be shut down. These poor patients are finding out that there is no such thing as expediency at CIRM. How many years now have they been telling patients that there will be lots of clinical trials and cures are just around the corner? All you have to do is keep the tax payer money rolling in to fund their labs and salaries for the next decade.<br /><br />You can join a study and become a Guinea pig for our Pharma trial so we can make billions, but don't go to those evil stem cell clinics and be a Guinea pig so they can make millions.<br /><br />But the they don't mention going to Pharma trial is like roulette, 50/50 chance of actually getting the real stuff or placebo. If you have heart muscle or stroke damage and are in danger of a re-occurrence, it's a crap-shoot waiting 6 months to a year until you get the real therapeutic if you are in the placebo group. Medical trials treat humans as rats.<br /><br />We live in an upside down backwards world! The Big Pharma/Research Monster has gotten so big, so bloated, and lives only to feed itself that one wonders what it will take to capture it and send it off to the land of Monsters, so it can be replaced with meaningful research whose purpose is to benefit patients!<br />Anonymoushttps://www.blogger.com/profile/16828124430542662738noreply@blogger.comtag:blogger.com,1999:blog-10000891.post-33416806325738022952015-09-20T20:00:49.918-07:002015-09-20T20:00:49.918-07:00I am posting the following on behalf of Diane Pool...I am posting the following on behalf of Diane Pool, who reported difficulties with the comment function on the blog. If others have problems with the comment function, please email me at djensen@californiastemcellreport.com. Here is Pool's comment.<br />"Three times I tried to publish a comment under the article about delays but they were not uploaded. Is it censorship or a simple software issue? Here is my comment: 'As a friend of one of the ten Parkinson's stem cell team, I am appalled and distressingly dismayed at patronizingly bureaucratic delays that deny intelligent people their right to determine their own health care.' "David Jensenhttps://www.blogger.com/profile/00077329461962729362noreply@blogger.com